by Deb Silverthorn
Be The Difference Foundation (BTDF) is set to host its sixth Wheel to Survive event on February 18 from 9am to 3pm at the Aaron Family JCC. The initiative was founded by four ovarian cancer survivors who have collectively raised $2 million since the event’s inception.
One of the founding members, Jill Bach, a devoted wife and mother of two, is approaching her 11-year milestone of survivorship this coming April. At 44, she initially attributed a persistent cough to bronchitis, but imaging revealed alarming results in her left lung. A subsequent biopsy and PET scan confirmed the diagnosis of stage IV ovarian cancer.
“In light of the statistics, I felt I had survived for a purpose, which is the foundation,” said Bach, who carries the BRCA1 mutation.
Another founder, Lynn Lentscher, a retired real estate professional and proud mother and grandmother, faced a stage 3 ovarian cancer diagnosis at 53. Following a year of treatments and subsequent health challenges, she has now been cancer-free for 18 years.
“I implored for survival, yet I also sought clarity on my purpose if I were to survive. I realized how critical it is to provide hope,” Lentscher shared.
After receiving her ovarian cancer diagnosis at 48, Julie Shrell underwent BRCA1 testing, which came back positive. “Many symptoms of ovarian cancer are not well recognized,” explained Shrell, a senior residential mortgage loan officer and mother of three. “I experienced typical and some less common symptoms but never thought they could be serious.”
The late Helen Gardner, who passed away at 55, was a dedicated wife and mother of three. She tirelessly researched options for life-extending treatments and maximized her time with loved ones. Her legacy continues through her family’s involvement with the foundation; her husband Gary remains on the Board of Directors.
Statistics reveal that approximately 1.3% of women will develop ovarian cancer, with 39% of those inheriting the BRCA1 gene mutation at risk, and 11% to 17% of BRCA2 mutation carriers likely to develop the disease by age 70. The association between breast and ovarian cancers and these genes is particularly significant in families with multiple occurrences or among those of Ashkenazi Jewish descent. Early detection significantly boosts the five-year survival rate, exceeding 92%, while unclear symptoms often lead to late diagnoses, diminishing the survival rate to around 50%.
Among the beneficiaries of BTDF is Lazarex Foundation, which plays a vital role in assisting women in accessing treatments. They offer unique support for participation in FDA clinical trials, covering expenses like airfare, housing, and additional medical tests, having aided over 3,000 patients thus far.
“This year, Be The Difference has provided assistance to 15 patients with $35,000 allocated specifically for ovarian cancer support,” stated Erin Miller, Program Services Coordinator, whose husband Mike was diagnosed with pancreatic cancer in 2003. “Our experiences motivate us to help others find their way to treatment and peace of mind.”
Volunteering at UT Southwestern and participating in Survivors Teaching Students, Bach, Lentscher, and Shrell share their stories with patients and medical students, illustrating that cancer is more than mere statistics; it encompasses a profound journey of survival. “We cater to cancer survivors and those impacted by the illness, yet our desire to help grows,” Lentscher remarked. “We are committed to making a difference!”
The founders envision a future where ovarian cancer is treated as a manageable condition with effective therapies, ultimately aspiring to find a cure. Until that goal is reached, their mission is to uplift and inspire women battling the disease, fueled by the hope that sustains their work.
Email: wts@bethedifferencefoundation.org or visit
www.bethedifferencefoundation.org to register for the Wheel to Survive 2018 event.
Use promocode “GoodLife” to enjoy a $10 discount on registration.
